The regular fertility inquiry from her physician put Julian Peter, 29, towards a trail that leads her to realize that she was created without vagina or womb, a rare condition called Mayer-Rokitansky-Küster-Hauser (MRKH).
That's her story here
I sought medical attention for a checkup at the age of 17. I've had feet longing. This same psychiatrist began with usual questions even during appointment. 'When was the last time of yours? 'My response was, I still haven't had my periods. That marked the start of a long journey to live a lifetime with this entity.
I grew up into a nice kid. I'm the eldest child person in a family of two. My dad passed on when I was young and my mother moved to Nairobi for college.
It didn't worry me though, as a teenager, that I had not yet welcomed my cycles. I was still ignorant, and that I didn't have any pain meant and also I didn't have any alarm bells. My feet swelled in class eight, but I was okay within a couple of days. When I was in Stem Strand, the swelling recurred and I visited Nazareth Clinic in Limuru for a scan.
Upon telling the doctor that I didn't have a period, he advised me to have a health check. They just conducted a visual ct scan to figure out that I had no womb. The testing was then prescribed by the doctor to see if my reproductive system had been established.
The next scan showed that my reproductive system had been established, that from the outside, my "vagina" was closed. Mild operation was advised to open it. The doctor realised even during 2008 surgical procedure that there was a bigger problem; I had no "vagina" at all. They had to stop the multiple surgeries.
I proceeded for yet another scan after three days, which showed even though I had no vaginal opening, uterus, cervix, fallopian tubes, and I had one kidney. The surgeon uses some other scan that supported the findings, in shock. It was too much to be done by me. How do I get all those pieces missing? The doctor suggested that an MRI scan be performed and this indicated that I had Mullerian Agenesis, often referred to as MRKH.
The syndrome is a rare condition that affects the female reproductive system is Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome. And without womb or the upper two-thirds of the birth canal, women with the condition are born. One in every 5,000 women worldwide is affected by the disease, rendering the woman unable to bear children.
This same physician said that there was nothing else that could be done to resolve it after my examination. I was in denial and discomfort. For days, I struggled to bed. Yet life had to proceed. I returned to school and my education started. I was always hoping that it was just a dream, and it was about to dawn and I was a normal girl. I preserved hope. I did not speak to anyone at school about this. All they knew was that I was being handled because of my swollen feet. I kept it to myself. It's been easy to forget. And I did not have something that kept telling myself that I was unusual. I had no discomfort and my way of doing things wasn't disturbed by this disease.
I discovered the MRI study in the household in 2010, one year after my secondary school graduation, when I was doing the house cleaning. Once more, it hit me that I had a condition. For three years, I have not addressed the topic with anyone. Since the doctor had told us that nothing could be done, we had not addressed it as a family. I haven't got my cycles yet.
And that, I grasp what Murelian Agenesis was, I started researching online and that's when I found the word MRKH. I began studying about my illness and the process of acknowledgement began. I figured I was all alone in the world during this time.
Luckily, I observed Joaneva Wanjiru, a Kenyan lady with MRKH, talk about the situation in a K24 interview in 2015. I am not alone, I realized. She posted her details that I noted and checked for her. She linked me with MRKH to other ladies.
I was willing to share without any judgement when I met my MRKH sisters. They heard me and what I was feeling. With me, they expressed their affection. We were linked to a physician in Tanzania via MRKH Africa. People with MRKH are unable to get pregnant, do not menstruate, and are likely to require special care to be given intimacy.
I was motivated to value the slightest of items in life by getting MRKH. I was willing to understand that I'd never carry a baby of my own. Women with MRKH would have regular female chromosomes and ovaries with eggs in most cases, which ensures that they will produce offspring with the aid of Donor sperm and a mother. My approach is changing because I just do not have the ovaries, and so fertility treatment does not work for me. When I get ample grace to do it, I will suggest child adoption.
I also encountered people who, after hearing about my illness, ran and hid. I don't feel embarrassed about it.
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